Platform to standardize data collection in physician offices for analysis by researchers in an open database
There is a lack of potential therapeutics for neurodegenerative diseases such as Alzheimer’s. To discover new avenues of research, we have developed an easy-to-use platform to collect data in a standardized way from patients. This data will be made anonymous and will be available to the public on our platform where researchers can run algorithms to identify new trends that they may be interested in pursuing, as well as access related research articles.
NodeJS, SQLite, jQuery, Gulp
Majid Behboudi - @Majid_B - UX
Barak Gall - @Barak_G - developer extraordinaire
Arslan Shahid - @Arslan_S - designer/UX
Jordan Weir - @jordain - developer guru
Agnes Lau - @Agnes_L - researcher/QA
Link to source code
The full story:
We were interested in developing something that was useful for researchers because there is no cure for diseases such as Alzheimer’s, which is one of the leading causes of dementia. It’s important to continue identifying new avenues for research to further understand the disease so that new therapies may be found. Since there is no cure, early diagnosis also becomes crucial for current patients to try to slow the progression of symptoms.
To tackle this problem, we have developed a platform to collect data from patients that is easy-to-use and will help save time in the physician’s office. Before a patient arrives to the physician’s office for their appointment, they will be sent an email with a link to fill out their medical history and answer questions. Closer to their appointment, they will be sent another email with the opportunity to update this information. Once the patient arrives to their physician’s office, they will be registered by the receptionist and asked to complete a set of cognitive tests on a tablet while waiting for their appointment to begin. This will help cut down on time required with the physician. The nurse will also be able to enter routine measurements taken from the patient such as height, weight, and blood pressure.
When the physician enters the room, they will be able to review the cognitive tests completed, as well as routine measurements taken by the nurse. Through the platform, they will then follow sequential steps. They will be able to go through the medical history and questionnaire with the patient quickly to ensure it is correct, followed by any physical examinations required that they will take note of in the platform. At the end, they will be prompted to order urine analysis and blood work with a specific set of markers as well as any other markers they feel are necessary.
By using this platform, data will be collected in a standardized fashion since every physician will follow the same steps, ask the same questions, use the same cognitive tests, and order blood/urine tests with a specified core set of markers.
This information will feed into a database that is open to the public. Using the platform, researchers will be able to filter through the data sets and input algorithms to mine for trends which they may find interesting to investigate. When clicking on trends, related research articles of interest will be shown, and the platform will also provide a way to communicate with collaborators.